Skip to main content

Big Day Today

I'm writing this post from the hotel. I'm a little bored this morning so I decided to write this.

Today I'll be having a catscan of my chest at 9:15, and MRI right after that of my arm to see how much Jimmy shrunk. Hopefully down to nothing! At 12 I'll have a meeting with my surgeon to plan the surgery. If you think these tests would stress me out, then you're absolutely right. The procedure itself is what gets me too. I hate being in those tubes, enclosed like that. I don't think I'm claustrophobic, but I'm definitely MRI, and CAT-phobic. And it doesn't end today with the tests. I got a call yesterday, that the doctor wants me to get a bone scan. So that's scheduled for this Friday. The past few days have been a little hard for me, so I did what I always do when I'm realy stressed out like this.....Exercise! Yeah, the same kid who didn't do anything but sleep in his bed all of Saturday was on the treadmill that Tuesday. I only was on it for 7 minutes, but I did work up to a jog. I also did some bodyweight squats too. It felt pretty good to exercise. It not only helped with the stress which is why I exercised in the first place, but I also need to stay strong. My legs have gotten much thinner from not using them, and I don't want them to get any weaker. I'm going to try to exercise as often as I can during this little break.
Running on the treadmill like a boss!



Please keep me in your prayers today!




Comments

  1. AnonymousNovember 21, 2013 at 10:54 AM

    Hello Mike,

    My name is Kristen and my brother also has Ewing's Sarcoma. His cancer is growing off a vertebrae right beside his spine. I was wondering if you would ever be interested in talking sometime. I personally have not yet met anyone going through what I'm going through, and I think it would be helpful for me to talk. Maybe it would be helpful for you as well. Please let me know if you're ever interested.

    I hope your scans go well; I know how stressful waiting for results is.

    Also- to go along with your comfy chemo jacket, my mum has bought some soft head covers for my brother that might go well with your sweater. http://www.headcovers.com/ has some stylish, warm hats you could rock. :)

    ReplyDelete
  2. UnknownNovember 21, 2013 at 2:01 PM

    Hi Mike!

    We are definitely thinking of you today! LOVE the treadmill photo. I can't wait until you can say "remember that Thanksgiving 20 years ago when i had surgery? " Stay strong as I know you will... Ellen and Greg Hamilton :)

    ReplyDelete

Post a Comment

Popular posts from this blog

First Entry!

Today is my first post on my blog about my battle with Ewing's Sarcoma. The main purpose of this post is to get my readers to know a little bit about me, and to provide a little background of this cancer that I have. First and foremost I am 19 years old, live in a family of 5 with two great younger brothers, and loving parents. I love to play sports, video games, and I'm very passionate about technology. I don't really have a favorite sports team because I don't like to watch sports, but my favorite sport to play is basketball. I'm not much of a bragger, but I am very good at basketball because I'm very athletic. I can dunk easily. Check it out...  mike's dunks on youtube . I am a sophomore student at Penn State University majoring in Computer Science. I'm also from Pennsylvania, in the small Mountaintop area.  Personally, I am a very reserved person, I like to keep to myself. It might be surprising to you that someone that is so reserved would mak...
15 comments
Read more

10 Year Survivor

Hi everyone, its been a while. I think this might be the largest time gap between posts. I've had a tough time with this entry, coming back to it from time to time over the last several months. Every time I finished editing I just did not like it and scrapped it. Hopefully take 4 is the charm, lets get into it. Late in 2023 I became a 10 year survivor and also turned 30. It was a deep time of reflection for me. There were many questions I asked myself, but the most challenging ones included:  Why am I still here?  Am I happy?  What changes do I need to make to become happier?  Am I ready to make those changes?  What are my goals?  What has gone well these last 10 years?  What do I want to do better going forward? Very deep, uncomfortable topics and questions I had been stressing about, but avoiding for years. It was both empowering and deeply saddening to reflect on these topics. I hated to admit it at the time, but I was very unhappy. I was going thro...
10 comments
Read more

It's Back Again

Since my last post I have had two sets of scans.  I had my first scan in March, and with that came uncertainty. It appeared to have grown on the scan, but my primary oncologist, and surgeon from last summer remained skeptical of this being a recurrence. My oncologist in Cleveland believed it to be a recurrence. His opinion was that it would need to be taken care of sometime this summer. My most recent scan has now put both of my oncologists in agreement. It's now 99.9% likely to be another recurrence. It is now measured at 9x8 mm, up from 6.8x6 mm in December. Luckily it is growing slow for Ewing's, and at least nothing else has come up on the scans yet, but it is still terrible news. This will need to be taken of, and will be soon. The best option for me after consultation with both of my oncologists is to enroll in the Vigil trial ( https://clinicaltrials.gov/ct2/show/NCT03495921 ).  It was originally slated to start taking patients at the end of June, but has ...
11 comments
Read more