Sarcoma Strong Fundraiser

Since my last update I signed up to run a 5k! It is in support of the Sarcoma Strong foundation. My new surgeon from UT Southwestern is the race director and will be opening and closing the event with remarks. The run itself is at White Rock Lake which is where I have been volunteering to help cleanup.

I'm looking forward to the event. It will be nice to meet others affected by this disease there. I've never participated in an event like this before so wish me luck.

If you are able it is greatly appreciated if you can donate. You can do so here.

Comments

First Entry!

Today is my first post on my blog about my battle with Ewing's Sarcoma. The main purpose of this post is to get my readers to know a little bit about me, and to provide a little background of this cancer that I have. First and foremost I am 19 years old, live in a family of 5 with two great younger brothers, and loving parents. I love to play sports, video games, and I'm very passionate about technology. I don't really have a favorite sports team because I don't like to watch sports, but my favorite sport to play is basketball. I'm not much of a bragger, but I am very good at basketball because I'm very athletic. I can dunk easily. Check it out... mike's dunks on youtube . I am a sophomore student at Penn State University majoring in Computer Science. I'm also from Pennsylvania, in the small Mountaintop area. Personally, I am a very reserved person, I like to keep to myself. It might be surprising to you that someone that is so reserved would mak

10 Year Survivor

Hi everyone, its been a while. I think this might be the largest time gap between posts. I've had a tough time with this entry, coming back to it from time to time over the last several months. Every time I finished editing I just did not like it and scrapped it. Hopefully take 4 is the charm, lets get into it. Late in 2023 I became a 10 year survivor and also turned 30. It was a deep time of reflection for me. There were many questions I asked myself, but the most challenging ones included: Why am I still here? Am I happy? What changes do I need to make to become happier? Am I ready to make those changes? What are my goals? What has gone well these last 10 years? What do I want to do better going forward? Very deep, uncomfortable topics and questions I had been stressing about, but avoiding for years. It was both empowering and deeply saddening to reflect on these topics. I hated to admit it at the time, but I was very unhappy. I was going through the motions. I was survivi

It's Back Again

Since my last post I have had two sets of scans. I had my first scan in March, and with that came uncertainty. It appeared to have grown on the scan, but my primary oncologist, and surgeon from last summer remained skeptical of this being a recurrence. My oncologist in Cleveland believed it to be a recurrence. His opinion was that it would need to be taken care of sometime this summer. My most recent scan has now put both of my oncologists in agreement. It's now 99.9% likely to be another recurrence. It is now measured at 9x8 mm, up from 6.8x6 mm in December. Luckily it is growing slow for Ewing's, and at least nothing else has come up on the scans yet, but it is still terrible news. This will need to be taken of, and will be soon. The best option for me after consultation with both of my oncologists is to enroll in the Vigil trial ( https://clinicaltrials.gov/ct2/show/NCT03495921 ). It was originally slated to start taking patients at the end of June, but has b

Mike Judge vs Ewing's Sarcoma

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