Mike Judge vs Ewing's Sarcoma

Had a great day yesterday with my family. Dinner was great, and so were the desserts. In my family we have three birthdays in the span of 2 weeks so we celebrate them all on Thanksgiving. This means lots of dessert with cake, and ice cream being added to the usual pumpkin, and apple pies. I don't complain because I eat a little bit of everything. I felt pretty well yesterday considering the lack of sleep I got the night before doing some online holiday shopping. We played video games with our younger cousins. They loved Little Big Planet. It was they're first time playing the game, and in a few hours they got so good that we beat the most difficult level in the game together. It was epic. Way to go Ryan, and Samantha! It was great fun! No Longer a Teen Double Digits! Biggest 10 Year Old Ever Today I feel pretty tired. But I was up a few times last night getting some deals so it's partially my fault. It's worth it because I'm almost done with holida...

I've been getting some of my results over the past few days. I hoped I would have gotten them earlier, but I didn't. The big test result I've been anxious to see was the MRI, and I finally received it this morning. The test results I got are the CT scan, and the MRI, but no bone scan. Let's start with the MRI results because that's what I'm sure you've been waiting for too. I read the report, and from what I can tell, everything looks good. What's left of Jimmy didn't absorb much of the contrast dye meaning the cells aren't active. There was less absorbed this time on the outside, and little to none on the inside. It's like an empty shell. My surgeon said that this happens sometimes. When they take Jimmy out, they are going to run tests on the cells of the tumor to find the necrosis percentage which is the percentage of the tumor that is dead. She said that in cases like mine that they are a lot of times close to 100%, which is awesome! H...

Just finished my last scan. The bone scan, which was the most difficult test for me. The scans yesterday actually weren't too bad. I didn't feel claustrophobic during the MRI, and CAT scans. I think the ativan helped with that, and the tubes weren't as tight as the ones I have been in before. The CAT scan only lasted 5 minutes, but the MRI was a little over an hour. The bone scan was really bad for 5 minutes, but the remainder of the test was easy as 3.14. If you were wondering what the procedure is for a bone scan since you probably never had one/heard of one before. It works like this. They gave me a radioactive injection today at 11am, and told me to come back at 11 for the scans. I had to make sure to drink lots of fluids during this time to lesson the potency of the radioactive material in my body. When I got back, they ran the test. The machine they used looked like this. My head was straight forward, facing the plate during that portion The test took aroun...

I'm writing this post from the hotel. I'm a little bored this morning so I decided to write this. Today I'll be having a catscan of my chest at 9:15, and MRI right after that of my arm to see how much Jimmy shrunk. Hopefully down to nothing! At 12 I'll have a meeting with my surgeon to plan the surgery. If you think these tests would stress me out, then you're absolutely right. The procedure itself is what gets me too. I hate being in those tubes, enclosed like that. I don't think I'm claustrophobic, but I'm definitely MRI, and CAT-phobic. And it doesn't end today with the tests. I got a call yesterday, that the doctor wants me to get a bone scan. So that's scheduled for this Friday. The past few days have been a little hard for me, so I did what I always do when I'm realy stressed out like this..... Exercise ! Yeah, the same kid who didn't do anything but sleep in his bed all of Saturday was on the treadmill that Tuesday. I only was on...

Another cycle of chemo in the books! This one was definitely the most difficult for me. It hit me really hard in comparison to what I've come to expect from this treatment. On Monday morning I felt really well and recovered from the last treatment, like I usually do. By the middle of the week I felt like I was a zombie; just going through the motions. Same routine everyday; wake-up, go to Radnor, get my treatment, go home, eat, then sleep. The latest I fell asleep this week was like 7. But I can't blame everything on the chemo. I got off to a bad start on Monday right when I walked into the office. They were surprised to see me there, and for some reason I wasn't on the schedule for the day. It wouldn't of been a problem if an oncologist didn't have to be there to receive chemo, but the oncologist was scheduled to leave at 11. So I was out of luck since my chemo runs until 2. I got my treatment at Penn in Philly, which I didn't like at all. I could write a w...

Since my last post I have had ups and downs as far as I feel. I felt like I was beginning to get over the chemo on Thursday, but then on Friday I got like a second wind of it or something. I felt worse on Saturday, and really bad on Sunday, especially after church. When I woke up I felt a bit better than Saturday so I decided to go to church since I haven't gone in 2 weeks. Big Mistake! Church was like a workout. I didn't realize how tired I really was until I had to stand for a few minutes. Standing, kneeling, and sitting...a workout, that's sad for me. The standing parts of mass were killing me.  My heart was racing like I ran sprints during those parts. When I got home I slept on the couch for hours, and went to bed early too(7:00). On these bad days, the only thing that was making me feel crappy was the fatigue; nothing else. But it was so intense. Sleeping, and resting didn't seem to even help much. Fortunately for me I started feeling a little better today. I ...