Skip to main content

Cycle 5B, and St. Jude's

Right now I'm in Radnor stuck in a hotel with a crazy snowstorm brewing outside. This storm is crazy. We already got 10 inches! Chemo was cancelled today due to the storm, and I'll be back for day 4 tomorrow. Day 5 will be Monday. Good thing the hotel is located right up the street from clinic. Tomorrow I'll find out how this storm will affect my next cycle. I'm thinking that my next cycle will be moved to next Wednesday because of my shots which would run until next Monday. 

So far I've been pretty good this week. This week has definitely been easier than the last B week. It's a shame that we got this storm though. I was only two days away from finishing the cycle, but now I'm so far away. I don't feel like I'm getting anything out of this day off, and then I'll have the same thing over the weekend only to get a day of chemo on Monday. I hope my next cycle is moved from Monday until Wednesday because I don't think I'll be ready for it on Monday. 

A special thanks goes to St. Jude's school, my grade school for holding a benefit for me. My family and I really appreciate all that you have done. I would also like to thank my old basketball coach Mr. Kempinski, and Mrs. Wills for organizing the event and for all of the wonderful things they said during the basketball game.

Hopefully this post made sense. I'm really tired, and I'm going to sleep now.

I Love the Shirt









Comments

Post a Comment

Popular posts from this blog

First Entry!

Today is my first post on my blog about my battle with Ewing's Sarcoma. The main purpose of this post is to get my readers to know a little bit about me, and to provide a little background of this cancer that I have. First and foremost I am 19 years old, live in a family of 5 with two great younger brothers, and loving parents. I love to play sports, video games, and I'm very passionate about technology. I don't really have a favorite sports team because I don't like to watch sports, but my favorite sport to play is basketball. I'm not much of a bragger, but I am very good at basketball because I'm very athletic. I can dunk easily. Check it out...  mike's dunks on youtube . I am a sophomore student at Penn State University majoring in Computer Science. I'm also from Pennsylvania, in the small Mountaintop area.  Personally, I am a very reserved person, I like to keep to myself. It might be surprising to you that someone that is so reserved would mak...

10 Year Survivor

Hi everyone, its been a while. I think this might be the largest time gap between posts. I've had a tough time with this entry, coming back to it from time to time over the last several months. Every time I finished editing I just did not like it and scrapped it. Hopefully take 4 is the charm, lets get into it. Late in 2023 I became a 10 year survivor and also turned 30. It was a deep time of reflection for me. There were many questions I asked myself, but the most challenging ones included:  Why am I still here?  Am I happy?  What changes do I need to make to become happier?  Am I ready to make those changes?  What are my goals?  What has gone well these last 10 years?  What do I want to do better going forward? Very deep, uncomfortable topics and questions I had been stressing about, but avoiding for years. It was both empowering and deeply saddening to reflect on these topics. I hated to admit it at the time, but I was very unhappy. I was going thro...

It's Back Again

Since my last post I have had two sets of scans.  I had my first scan in March, and with that came uncertainty. It appeared to have grown on the scan, but my primary oncologist, and surgeon from last summer remained skeptical of this being a recurrence. My oncologist in Cleveland believed it to be a recurrence. His opinion was that it would need to be taken care of sometime this summer. My most recent scan has now put both of my oncologists in agreement. It's now 99.9% likely to be another recurrence. It is now measured at 9x8 mm, up from 6.8x6 mm in December. Luckily it is growing slow for Ewing's, and at least nothing else has come up on the scans yet, but it is still terrible news. This will need to be taken of, and will be soon. The best option for me after consultation with both of my oncologists is to enroll in the Vigil trial ( https://clinicaltrials.gov/ct2/show/NCT03495921 ).  It was originally slated to start taking patients at the end of June, but has ...