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Showing posts from September, 2013

Cycle 2

Tomorrow I begin cycle 2 of my chemo. It will be part A of cycle 2. It'll be for one day just like last time, and I'm not too worried about it. Most of the issues I had last time weren't from the chemo, but from the other medicine I received, and getting the port installed. The medicine problem was fixed, and I won't have to starve this time during treatment so it'll be good. I'll have to take a picture of the Doxorubicin aka "The Red Devil." I'm ready to get treatment tomorrow. In fact I feel like I've been ready since Thursday. I realize that I might not recover even as fast last time, but I know that with the support of everyone that I will bounce back. This game has many obstacles, and luckily I haven't encountered many so far.  Yesterday I played basketball with my brother Joey. I played him one-on-one to 7. I told him to play his hardest and to not let me win. He kept his end of the bargain, and it was difficult. I could shut ...

My New Look

I forgot to mention in my last post that I'm bald now! Well here is what I look like bald... I don't think it looks bad at all. Here is what my hair looked like on Friday hours before it started falling out. The hair loss was dramatic. On friday morning I noticed a little bit of hair falling out when I showered. During the day my head felt really itchy. At around 8 pm I was able to pull clumps of my hair out of my head. I was able to get about half of my hair out with just my hands, but the other half wasn't ready at all so I just shaved off the rest. RIP my hair haha. I'm not really ashamed of losing my hair which surprises me because I was obsessed about losing it in the first place. The only thing that bothers me about my new bald head is that it gets cold sometimes. But I already have that covered with these chemo hats that my Aunt Diane bought me, and the skull caps that Aunt Chrissy bought me. They are a real lifesaver. They keep my head warm, but ...

Cycle 1 Compete

Wanted to get this post on here earlier, but I have been really tired the past few days. Fortunately, today is the best I have felt since before chemo started last Monday. I got a really good night of sleep last night, and I have been eating like a pig today haha. It's a really good thing that I'm constantly hungry now because I need to get my weight back since I lost 5 pounds since last week. Now to comment on last week's treatment... Monday was the longest day. I arrived at the University of Penn at Radnor at roughly 9:15, and we got in at 9:30. This was good because my appointment was at 10:00. This was the case everyday. I live 1 hour 45 minutes away from the facility, and we leave at roughly 7:15 just in case there are accidents. So if there aren't any delays, it's an early arrival. Penn at Radnor is only 15 minutes away from the facility in Philadelphia, but with traffic its an added 45-60 minutes. In 5 days that saves a lot of time and makes it a lot easi...

Big Week Ahead

This week will be the second part of my first cycle of chemo. It will be everyday from Monday through Friday for 4 hours. I'm a little nervous because this will be my first time getting these drugs, but I think I'll be alright. If this treatment is anything like my last treatment, then I expect to feel crappy for the next week or so, but I'll get better  each day for the following week. Right now I feel great. The sores in my mouth are mostly healed, and I haven't needed nausea medication in days. I went to the mall yesterday, and felt pretty good. I still have my hair! I expected to lose it by now. I'm also pumped about how my arm feels. This is the best its felt in like 2 months, and I've only had one treatment! The area around Jimmy feels softer. I can shoot a basketball now with only minimal pain which is a plus because basketball is my favorite way to exercise. The only bad things about the past week are as follows... I made the switch from the pill potas...

5 days into Treatment

Today marks the 5th day of treatment for me. In the past few days I haven't had much pain other than the irritation in my mouth. It isn't bad enough to stop me from eating completely, but it is bad enough to stop me from eating specific foods. For example I couldn't eat pineapple slices or V8 juice because it irritated the salivary glands under my tongue so much. Rinsing my mouth with a solution of 1 quart of water, and 1 teaspoon of baking soda, and salt every hour or so seems to help a lot. One thing that is taking me a while to get used to is taking so many pills throughout the day. On Friday I took like 18 pills in one day! It doesn't help that I'm terrible at taking pills too. I'm having a very difficult time with the potassium chloride pills because they are so large and taste so bad, so I'm going to make a switch to the liquid version this week. I only skipped one dosage on the potassium pills so far, but with the sores in my mouth getting worse; it w...

First Day of Treatment

On Wednesday, September 4th I received my first doses of chemotherapy. Here is how it all went down... Me and my mom left the house at roughly 6:15 as it takes 2 hours to get to the University of Pennsylvania in Philadelphia from where I live. Unfortunately with traffic we got there right on time for my 9 o'clock appointment. It was no problem though. First I had some tests done such as more blood work, and measuring my weight. Then, I was sat down in this room that was pretty public with other people also receiving treatments there. The nurse came over and asked me if I wanted to be in private room, and I quickly said yes. The room was a simple room, but it was very nice to be in there especially for the first treatment because there were a lot of people we talked to from the U of P team and it is easier to focus in a quiet room.  Since I wasn't scheduled to get my port installed into my chest until later that afternoon, I got my first chemo treatment through my ar...

First Entry!

Today is my first post on my blog about my battle with Ewing's Sarcoma. The main purpose of this post is to get my readers to know a little bit about me, and to provide a little background of this cancer that I have. First and foremost I am 19 years old, live in a family of 5 with two great younger brothers, and loving parents. I love to play sports, video games, and I'm very passionate about technology. I don't really have a favorite sports team because I don't like to watch sports, but my favorite sport to play is basketball. I'm not much of a bragger, but I am very good at basketball because I'm very athletic. I can dunk easily. Check it out...  mike's dunks on youtube . I am a sophomore student at Penn State University majoring in Computer Science. I'm also from Pennsylvania, in the small Mountaintop area.  Personally, I am a very reserved person, I like to keep to myself. It might be surprising to you that someone that is so reserved would mak...