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Showing posts from May, 2014

Two Months Free from Treatment

There's not much to report on other than my hair coming in really fast now. Everything else is about the same that I have been mentioning. It's really nice to see my hair coming in the way it is now. The hair is really fuzzy on my head which everyone seems to like except me. Over the weekend we had a yard sale. My cousins, and my brother Joey worked a lemonade stand to raise money for sarcoma research. I was so happy that they did this. Thanks again guys! It was also my cousin Samantha's birthday. She's 8 now! Nice Job! It was really nice weather over the weekend. I have to take extra care to cover up the scar on my arm when in the sun to prevent it from burning, and also my head until my hair grows in more. A sunburnt head is not fun, I had that last year when I cut my hair too short. My arm will burn really fast if I don't protect it. The scar is still red right now. Since I have a pool, and plan on swimming a lot this summer, I bought a swim shirt ( ...

1.5 months free from treatment

Since my last post, I have seen some improvements in my health. Here's the rundown in where I am now. -Hair. A few days after my update on April 18, my remaining hair fell out(legs, and eyebrows). My whole body was completely bald at that point. About a week after that I began to notice my head getting fuzzy. Within that week most of my body had at least a little bit of stubble. I actually shaved my face twice in the past few weeks. Pretty awesome since I haven't shaved since September. Right now I look a lot more "normal." I was never really embarrassed in losing my hair, but it's definitely nice to have it back. Give me another month or two, and I bet I'll have a full head of hair. -Neuropathy. I'm not sure, but I think its improving. I mainly notice it in the morning upon waking up. At this point it's not really that bad at all. The ridges on my fingernails are still working their way out. While I'm on the topic of nerve related stuff, my up...

Miles2Give

On Tuesday I was in New York City for the start of the Miles2Give tour. For those of you that don't know what Miles2Give is. It is a run around the United States to raise funds for sarcoma research. The team consists of four runners, and they will run 10,000 miles in the next 8 months for this great cause! They will run counter-clockwise starting in NYC, and end their tour in NYC sometime in December. The goal of Miles2Give this year is to raise $500,000 for sarcoma research for the Huntsman Cancer Institute in Utah. The research grant will go to a very well respected research team there. The team is making lots of discoveries in Sarcoma which is really exciting. This funding will help push that research further, and hopefully lead to better treatment in the future. Check out this video below. Now that you know a little bit about the Miles2Give event. Here was my experience on Tuesday. On Monday my mom, Aunt Diane, and I traveled to NYC since the event started at 7:30 in the...