Mike Judge vs Ewing's Sarcoma

Since my last post I have completed my first cycle of chemotherapy. Getting started was a hassle as there were delays with insurance and the pharmacy at VCU. Irinotecan is typically an IV drug, and VCU has never offered an oral solution. To my knowledge the Cleveland Clinic has been one of the only hospitals to offer an oral solution, and that's to help out patients traveling from all over for the Vigil trial. There were multiple calls made from VCU to the Cleveland Clinic, and eventually everyone was on the same page. Luckily it all worked out and I got started on October 10th which was only two days later than I wanted. I pick up my Irinotecan at VCU, and I pick up the Temozolomide at CVS through their specialty pharmacy. Being on the oral chemo will be much less disruptive than if I were to go through IV. Every cycle I will have bloodwork to make sure I can start chemo. The Temozolomide is simple to pickup since the CVS is within a mile of my house. I pick up the Irinotecan at...

Two weeks ago I traveled to Cleveland for my lung surgery. The surgery went well as expected. I was the first surgery of the day. My mom and I arrived at the hospital at 6 a.m, and I was knocked out by 7 a.m. The surgery took about an hour. The surgeon removed a wedge measuring 6.2x2.2x1.1 cm which was smaller than last year, but the nodule itself was larger measuring 0.9x0.5x0.3 cm. The surgeon was surprised by the minimal amount of scar tissue from last year's surgery. The margins were clean as well. Unsurprisingly, the nodule was Ewing's. This is officially my second recurrence. I had some nausea coming out of the surgery, and I did throw up once, but other than that I did pretty well in the hospital afterwards. I was discharged the following day. The six hour drive home from the hospital wasn't fun, but we got home after a few breaks. As for the trial, I did not make enough vaccine to get to the random selection phase, so I'm out. I made 3 vials, so the nodul...