Skip to main content

Posts

Showing posts from September, 2018

Surgery Delayed

Last week I was at the Cleveland Clinic.  All of the testing went well. My pulmonary function tests were all normal. On the PET scan no spots showed up (the lung nodule didn't light up because it's too small for a PET scan to pick up). Also, on the CT scan my lung nodule didn't grow. This pattern of growth is not typical for Ewing's. My oncologist told me that my case has been brought up at some of the sarcoma conferences he's attended. He thinks my immune system has been keeping my disease in check, and that this immunotherapy trial could make it even better. At this time, he believes my prognosis is favorable. I got some more clarity on the trial. Here's the flow of events that could happen. First, I will have the nodule removed from my lung. Then, Gradalis (the drug company responsible for Vigil) will try to make up to 12 vaccine vials for me with those cells. If there are less than 4 vials made, then I'm already out of the trial. This could happen if t...